2nd unexpected visit

When Ellie had her port accessed on June 5th for her final hospital chemo treatment, we told her that her port would never have to be accessed again. As a parent I should’ve known....never say never. Ellie had her port accessed on Monday and again yesterday when she was at the hospital for the second time this week. RSV has hit Ellie hard and we are watching her closely. We want to celebrate and be joyful, but it’s hard to feel that way when she is still sick. When, in her four year old mind, she is still going to the hospital and having her port accessed. She knows that she is done with her chemo, but I’m sure in some way Ellie feels betrayed.

Our family's health is still being attacked and we have grown very weary. We know that Ellie will be healed, completely and permanently. It’s just frustrating when it doesn’t happen in the timing that we want. Please continue to pray for Ellie’s healing and strength.

1st unexpected visit

We aren’t out of the woods just yet. Ellie developed a runny nose and nasty cough over the weekend, and this morning she spiked a fever. Since she still has her port, fevers are taken very seriously. Our morning is being spent at the infusion center, but we are hoping to leave this afternoon. Please continue to pray for Ellie’s healing.

By the Numbers

799 - days Ellie was on treatment for leukemia

568 - days Ellie received chemotherapy

392- consecutive days Ellie received chemotherapy

142 - days on steroids

45 - scheduled clinic visits, not including unscheduled and other specialists

43 - days Ellie did not walk

22 - nights spent in the hospital

20 - total different medicines Ellie has taken

14 - lumbar punctures

11 - ER visits

11 - ballerinas that danced with Ellie

8 - platelet transfusions

8 - IVIG infusions

8 - inches of hair that Eva and Nora donated

7 - pediatric cancer friendly organizations we have grown to love

6 - different chemotherapy drugs Ellie received

6 - roughly the amount of x-rays

4 - red blood transfusions

3 - hospitals Ellie has visited

2 - bone marrow aspirations

2 - surgeries 

2 - times that Ellie lost her hair

ONE strong and brave little girl that survived Leukemia