tag:blogger.com,1999:blog-30084621517258185512024-03-06T04:27:36.416-05:00 Yorks ALL InThe story of how Ellie overcame Leukemia.Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.comBlogger108125tag:blogger.com,1999:blog-3008462151725818551.post-62089542030751340822018-11-28T13:08:00.000-05:002018-11-29T13:11:48.827-05:006 Months Post Treatment<span style="background-color: white; color: #1d2129; font-family: Georgia, Times New Roman, serif; font-size: 14px;">At almost six months, Ellie is adjusting well to life post treatment. Layers of her true personality seem to be revealed every day. Beautiful emotions that were hidden or too hard to share with us remained hidden. But now they are emerging. We are learning about Ellie all over again and it is exciting! And, it should be said, she is FUNNY! There is little better than the sound of her laugh.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">There are are still many undesirable side effects that we are still dealing with. Hon<span class="text_exposed_show" style="display: inline;">estly, they could be life long. New side effects could still emerge later. We wait, pray and hope for the best. Her platelets have yet to recover which causes a lot of bruising. She complains almost daily of leg pain. Rage is an ugly emotion that we deal with as well. Still, we are overwhelmingly grateful that Ellie is finished with treatment.</span></span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">If you are in the Tampa Bay Area, you may have seen Ellie’s face a tad more frequently in the past week. Ellie had the unique opportunity to participate in campaigns for both <a class="profileLink" data-hovercard-prefer-more-content-show="1" data-hovercard="/ajax/hovercard/page.php?id=126481014190501&extragetparams=%7B%22__tn__%22%3A%22%2CdK-R-R%22%2C%22eid%22%3A%22ARA85ij8B-oYkRfRVAZ4mTyaltmXaUUf0wRvv1Fuh27ItHV_MkA3bliNTjdUZw2-KCCSEynYpTfeDWcQ%22%2C%22fref%22%3A%22mentions%22%7D" href="https://www.facebook.com/BayCare/?__tn__=K-R&eid=ARA85ij8B-oYkRfRVAZ4mTyaltmXaUUf0wRvv1Fuh27ItHV_MkA3bliNTjdUZw2-KCCSEynYpTfeDWcQ&fref=mentions&__xts__%5B0%5D=68.ARCAYxRFFZEBytQqX1Tw__hno24ZpcTJsMUB3onoXml6gfH9spy8KsKlfcbcZjnaN9ZrDZk2yUaQGZTb2nmHB_xiYC-jSCP9Bfd0gXuhveRrQqhB74TCI_e3hVpiVTnskD5es7QXsfGAh2WRLbHFJevY7EUlwZ3pQrsSWtz0gHJxUzFAjVKaiXjOJcoWUQR-0XY2LnzllGMRg3dpnoix-x2T1B2Vabv7muU8PrJCcH48VRRVYCbBqXlw3TAFilnd7N9QtpEMIHzHUYIU1e8ZE_SM2WeZBItS-iaJ-BfmCcmpWC4oA0qtR6ko-1W2g6Qb_GtJn_pokCbZx_oIH0hrpX7qkp0_" style="color: #365899; cursor: pointer;">BayCare</a> and <a class="profileLink" data-hovercard-prefer-more-content-show="1" data-hovercard="/ajax/hovercard/page.php?id=99044554628&extragetparams=%7B%22__tn__%22%3A%22%2CdK-R-R%22%2C%22eid%22%3A%22ARAVj5dZBZ95Rm7zD7YfqII_9qjZwCs68sEkgVr8xx-mRsRaj9RK7acIHvh5J3cWwuH3yvfss46OlCXv%22%2C%22fref%22%3A%22mentions%22%7D" href="https://www.facebook.com/panerabread/?__tn__=K-R&eid=ARAVj5dZBZ95Rm7zD7YfqII_9qjZwCs68sEkgVr8xx-mRsRaj9RK7acIHvh5J3cWwuH3yvfss46OlCXv&fref=mentions&__xts__%5B0%5D=68.ARCAYxRFFZEBytQqX1Tw__hno24ZpcTJsMUB3onoXml6gfH9spy8KsKlfcbcZjnaN9ZrDZk2yUaQGZTb2nmHB_xiYC-jSCP9Bfd0gXuhveRrQqhB74TCI_e3hVpiVTnskD5es7QXsfGAh2WRLbHFJevY7EUlwZ3pQrsSWtz0gHJxUzFAjVKaiXjOJcoWUQR-0XY2LnzllGMRg3dpnoix-x2T1B2Vabv7muU8PrJCcH48VRRVYCbBqXlw3TAFilnd7N9QtpEMIHzHUYIU1e8ZE_SM2WeZBItS-iaJ-BfmCcmpWC4oA0qtR6ko-1W2g6Qb_GtJn_pokCbZx_oIH0hrpX7qkp0_" style="color: #365899; cursor: pointer;">Panera Bread</a> with the <a class="profileLink" data-hovercard-prefer-more-content-show="1" data-hovercard="/ajax/hovercard/page.php?id=32785324435&extragetparams=%7B%22__tn__%22%3A%22%2CdK-R-R%22%2C%22eid%22%3A%22ARD5m0FQYvzQxqGK3Ezqxjl4k29SIWYzXNjcHLdHryc2m1a4BGtct2YSfBn9qkn3CcpxuMEsIDgl-bfp%22%2C%22fref%22%3A%22mentions%22%7D" href="https://www.facebook.com/DailyCCC/?__tn__=K-R&eid=ARD5m0FQYvzQxqGK3Ezqxjl4k29SIWYzXNjcHLdHryc2m1a4BGtct2YSfBn9qkn3CcpxuMEsIDgl-bfp&fref=mentions&__xts__%5B0%5D=68.ARCAYxRFFZEBytQqX1Tw__hno24ZpcTJsMUB3onoXml6gfH9spy8KsKlfcbcZjnaN9ZrDZk2yUaQGZTb2nmHB_xiYC-jSCP9Bfd0gXuhveRrQqhB74TCI_e3hVpiVTnskD5es7QXsfGAh2WRLbHFJevY7EUlwZ3pQrsSWtz0gHJxUzFAjVKaiXjOJcoWUQR-0XY2LnzllGMRg3dpnoix-x2T1B2Vabv7muU8PrJCcH48VRRVYCbBqXlw3TAFilnd7N9QtpEMIHzHUYIU1e8ZE_SM2WeZBItS-iaJ-BfmCcmpWC4oA0qtR6ko-1W2g6Qb_GtJn_pokCbZx_oIH0hrpX7qkp0_" style="color: #365899; cursor: pointer;">Children's Cancer Center</a>.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">You can view the commercial here:</span></div>
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<a href="https://m.youtube.com/watch?v=adYHlGXrzQU" target="_blank"><span style="font-family: Georgia, Times New Roman, serif;">https://m.youtube.com/watch?v=adYHlGXrzQU</span></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Thank you for your continued love and prayers for Ellie.</span></div>
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<a class="profileLink" data-hovercard-prefer-more-content-show="1" data-hovercard="/ajax/hovercard/page.php?id=62561996431&extragetparams=%7B%22__tn__%22%3A%22%2CdK-R-R%22%2C%22eid%22%3A%22ARBGjhztiOt6a0Pp7V54GkKPvgK2E71XrzGDQ4vXmv1yTHtazCZq4gfGx3iJKritWsF1UI3EUroCHB6M%22%2C%22fref%22%3A%22mentions%22%7D" href="https://www.facebook.com/NationalPediatricCancer/?__tn__=K-R&eid=ARBGjhztiOt6a0Pp7V54GkKPvgK2E71XrzGDQ4vXmv1yTHtazCZq4gfGx3iJKritWsF1UI3EUroCHB6M&fref=mentions&__xts__%5B0%5D=68.ARCAYxRFFZEBytQqX1Tw__hno24ZpcTJsMUB3onoXml6gfH9spy8KsKlfcbcZjnaN9ZrDZk2yUaQGZTb2nmHB_xiYC-jSCP9Bfd0gXuhveRrQqhB74TCI_e3hVpiVTnskD5es7QXsfGAh2WRLbHFJevY7EUlwZ3pQrsSWtz0gHJxUzFAjVKaiXjOJcoWUQR-0XY2LnzllGMRg3dpnoix-x2T1B2Vabv7muU8PrJCcH48VRRVYCbBqXlw3TAFilnd7N9QtpEMIHzHUYIU1e8ZE_SM2WeZBItS-iaJ-BfmCcmpWC4oA0qtR6ko-1W2g6Qb_GtJn_pokCbZx_oIH0hrpX7qkp0_" style="color: #365899; cursor: pointer;"><span style="font-family: Georgia, Times New Roman, serif;">National Pediatric Cancer Foundation</span></a><br />
<a class="profileLink" data-hovercard-prefer-more-content-show="1" data-hovercard="/ajax/hovercard/page.php?id=185613251494969&extragetparams=%7B%22__tn__%22%3A%22%2CdK-R-R%22%2C%22eid%22%3A%22ARBW5YIJHo4tQR-3Nid6-907JP3VB9fprxQzWiaXy0WIkCnVh5z9YybOiUxAB3ht6SZR1x-BitduKdnc%22%2C%22fref%22%3A%22mentions%22%7D" href="https://www.facebook.com/tampaballettheatre/?__tn__=K-R&eid=ARBW5YIJHo4tQR-3Nid6-907JP3VB9fprxQzWiaXy0WIkCnVh5z9YybOiUxAB3ht6SZR1x-BitduKdnc&fref=mentions&__xts__%5B0%5D=68.ARCAYxRFFZEBytQqX1Tw__hno24ZpcTJsMUB3onoXml6gfH9spy8KsKlfcbcZjnaN9ZrDZk2yUaQGZTb2nmHB_xiYC-jSCP9Bfd0gXuhveRrQqhB74TCI_e3hVpiVTnskD5es7QXsfGAh2WRLbHFJevY7EUlwZ3pQrsSWtz0gHJxUzFAjVKaiXjOJcoWUQR-0XY2LnzllGMRg3dpnoix-x2T1B2Vabv7muU8PrJCcH48VRRVYCbBqXlw3TAFilnd7N9QtpEMIHzHUYIU1e8ZE_SM2WeZBItS-iaJ-BfmCcmpWC4oA0qtR6ko-1W2g6Qb_GtJn_pokCbZx_oIH0hrpX7qkp0_" style="color: #365899; cursor: pointer;"><span style="font-family: Georgia, Times New Roman, serif;">Tampa Ballet Theatre</span></a><br />
<a class="profileLink" data-hovercard-prefer-more-content-show="1" data-hovercard="/ajax/hovercard/page.php?id=111664083174&extragetparams=%7B%22__tn__%22%3A%22%2CdK-R-R%22%2C%22eid%22%3A%22ARAtsaW6GypWqxFqIS1XDmnca3WibE6W9zxqap24pgWhc7VUjMfN25sfnhn7KbHGDG02eNxZIxjruxC8%22%2C%22fref%22%3A%22mentions%22%7D" href="https://www.facebook.com/brandon.ballet/?__tn__=K-R&eid=ARAtsaW6GypWqxFqIS1XDmnca3WibE6W9zxqap24pgWhc7VUjMfN25sfnhn7KbHGDG02eNxZIxjruxC8&fref=mentions&__xts__%5B0%5D=68.ARCAYxRFFZEBytQqX1Tw__hno24ZpcTJsMUB3onoXml6gfH9spy8KsKlfcbcZjnaN9ZrDZk2yUaQGZTb2nmHB_xiYC-jSCP9Bfd0gXuhveRrQqhB74TCI_e3hVpiVTnskD5es7QXsfGAh2WRLbHFJevY7EUlwZ3pQrsSWtz0gHJxUzFAjVKaiXjOJcoWUQR-0XY2LnzllGMRg3dpnoix-x2T1B2Vabv7muU8PrJCcH48VRRVYCbBqXlw3TAFilnd7N9QtpEMIHzHUYIU1e8ZE_SM2WeZBItS-iaJ-BfmCcmpWC4oA0qtR6ko-1W2g6Qb_GtJn_pokCbZx_oIH0hrpX7qkp0_" style="color: #365899; cursor: pointer;"><span style="font-family: Georgia, Times New Roman, serif;">Brandon Ballet</span></a></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-9280014055359912722018-10-23T13:11:00.000-04:002018-11-29T13:11:35.580-05:00Happy 5th Birthday Ellie!<span style="background-color: white; color: #1d2129; font-family: Georgia, "Times New Roman", serif; font-size: 14px;">Today, Ellie turns 5 years old. That’s 60 months, 26 that were spent fighting cancer. She is four months post treatment and overall is doing great. We feel so blessed to be at this point, and are continually optimistic about her future. Thank you for your continued love and prayers.</span><br />
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"><br /></span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-46373704562179034872018-08-07T13:12:00.000-04:002018-11-29T13:13:35.197-05:00<span style="background-color: white; color: #1d2129; font-family: Georgia, "Times New Roman", serif; font-size: 14px;">When your big sisters start school a week before you and you are NOT happy about it...</span><br />
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"><br /></span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-53446685671990684592018-06-14T13:14:00.000-04:002018-11-29T13:15:01.051-05:002nd unexpected visit<span style="background-color: white; color: #1d2129; font-family: Georgia, "Times New Roman", serif; font-size: 14px;">When Ellie had her port accessed on June 5th for her final hospital chemo treatment, we told her that her port would never have to be accessed again. As a parent I should’ve known....never say never. Ellie had her port accessed on Monday and again yesterday when she was at the hospital for the second time this week. RSV has hit Ellie hard and we are watching her closely. We want to celebrate and be joyful, but it’s hard to feel that way when she is still sick. When, in her fo</span><span class="text_exposed_show" style="background-color: white; color: #1d2129; display: inline; font-family: Georgia, "Times New Roman", serif; font-size: 14px;">ur year old mind, she is still going to the hospital and having her port accessed. She knows that she is done with her chemo, but I’m sure in some way Ellie feels betrayed.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Our family's health is still being attacked and we have grown very weary. We know that Ellie will be healed, completely and permanently. It’s just frustrating when it doesn’t happen in the timing that we want. Please continue to pray for Ellie’s healing and strength.</span></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-86675458235797167912018-06-11T13:15:00.000-04:002018-11-29T13:16:07.206-05:001st unexpected visit<span style="background-color: white; color: #1d2129; font-family: Georgia, "Times New Roman", serif; font-size: 14px;">We aren’t out of the woods just yet. Ellie developed a runny nose and nasty cough over the weekend, and this morning she spiked a fever. Since she still has her port, fevers are taken very seriously. Our morning is being spent at the infusion center, but we are hoping to leave this afternoon. Please continue to pray for Ellie’s healing.</span><br />
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-26412090559620590132018-06-10T13:21:00.000-04:002018-11-29T13:26:20.213-05:00By the Numbers<span style="font-family: "georgia" , "times new roman" , serif;">799 - days Ellie was on treatment for leukemia</span><br />
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<span style="font-family: georgia, "times new roman", serif;">568 - days Ellie received chemotherapy</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">392- consecutive days Ellie received chemotherapy</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">142 - days on steroids</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">45 - scheduled clinic visits, not including unscheduled and other specialists</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">43 - days Ellie did not walk</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">22 - nights spent in the hospital</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">20 - total different medicines Ellie has taken</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">14 - lumbar punctures</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">11 - ER visits</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">11 - ballerinas that danced with Ellie</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">8 - platelet transfusions</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">8 - IVIG infusions</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">8 - inches of hair that Eva and Nora donated</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">7 - pediatric cancer friendly organizations we have grown to love</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">6 - different chemotherapy drugs Ellie received</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">6 - roughly the amount of x-rays</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">4 - red blood transfusions</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">3 - hospitals Ellie has visited</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">2 - bone marrow aspirations</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">2 - surgeries </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">2 - times that Ellie lost her hair</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">ONE strong and brave little girl that survived Leukemia</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhILvWvHQ2tSH9JZp2URzyx9nlJ_Sc5LLTyi7qV_YVZIMgBOHWtWncQtNTsP5FXjvs9i8ju3RQV57vZt3K818eQzgZ02yTcNufAu1IV6lW9UmvW2pdCxbbwoEgJFaJrylrRzco0EsNkhMQ/s1600/IMG_2813.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhILvWvHQ2tSH9JZp2URzyx9nlJ_Sc5LLTyi7qV_YVZIMgBOHWtWncQtNTsP5FXjvs9i8ju3RQV57vZt3K818eQzgZ02yTcNufAu1IV6lW9UmvW2pdCxbbwoEgJFaJrylrRzco0EsNkhMQ/s640/IMG_2813.JPG" width="480" /></a></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-63454137032040237622018-05-30T20:15:00.001-04:002018-05-30T20:15:46.493-04:00Single Digits<span style="font-family: "georgia" , "times new roman" , serif;">Nine days left. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Nine.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Single digits.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">To be honest, it is hard to believe that it's almost over. When Ellie first began treatment we thought this day would never come. Back in April of 2016, June of 2018 seemed like an eternity away, but it's finally arrived. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">The days are long, the years are short. Not this time. The years were long, the days were long, and sometimes mere seconds were long. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">I truly can't remember life before cancer. I remember life before I was married. I remember life before children. But I do not remember life before cancer. It becomes a part of you in a way that is difficult to explain. Pediatric cancer is everywhere and now I finally see it. Our eyes, all five of us, have been opened to cancer and they will never close. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">The length of Ellie's treatment totals 799 days. Today is day 790. Only 9 days left.</span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixki0Sge5Vsp2YnKBqxC5P7AO8IcmVy_EQKeGkwcVEwSZZyn-awwFCTZzYJe2VqVEVIdVStDKjnRIvpf5roZOTFW-fzXSBdVrS2eQ8FEQHnqDXyGDLlzuwfo4wQPp0sYRgCb1X6Hv9cBg/s1600/IMG_1855.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1280" data-original-width="960" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixki0Sge5Vsp2YnKBqxC5P7AO8IcmVy_EQKeGkwcVEwSZZyn-awwFCTZzYJe2VqVEVIdVStDKjnRIvpf5roZOTFW-fzXSBdVrS2eQ8FEQHnqDXyGDLlzuwfo4wQPp0sYRgCb1X6Hv9cBg/s640/IMG_1855.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><b>The first picture after learning of her diagnosis.</b></span></td></tr>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-65220564846345495922018-05-20T16:39:00.001-04:002018-05-20T16:39:13.935-04:00Dancing with the National Pediatric Cancer Foundation<span style="font-family: Georgia, Times New Roman, serif;">For as long as I can remember, Ellie has loved to perform. She loves to dance, sing, dress up in costumes, put on shows...everything. My phone is filled with pictures of her in crazy costumes and filled with videos of her dances. I think her love for dancing was only fueled by watching her sisters and cousin dance for two years. She was so excited to start taking dance classes, that it was one thing that we refused to allow cancer to take from Ellie. For the past two years Ellie has had very little interaction with kids her age, especially in a group setting. But this past fall, when she was old enough to start dance, we let her begin classes. She was over the moon with excitement!</span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcp4Ocey3SEHteqx7zFkF0rxFGzfSes_R-O7-pZzX3_MedJJWxeaf8RoWyO7R38ac1V8JT0P0CMbtsC87Zf6VgkkQR6cPYCSprJawK4XEp_KyI_k-CU3LLZqsoJWb9MiYGONNeT5yEGAY/s1600/IMG_9260.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcp4Ocey3SEHteqx7zFkF0rxFGzfSes_R-O7-pZzX3_MedJJWxeaf8RoWyO7R38ac1V8JT0P0CMbtsC87Zf6VgkkQR6cPYCSprJawK4XEp_KyI_k-CU3LLZqsoJWb9MiYGONNeT5yEGAY/s640/IMG_9260.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="font-family: Arial, Helvetica, sans-serif;">Ellie on the first day of dance class.</span></b></td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">This was one of the decisions that we made to care for Ellie's heart during treatment. She probably missed at least 1/3 of the classes and wasn't always well when she was in class, but she was dancing and I think that made her very happy.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitVydqjd1eLvQ-EYCwl81v-px5Wbom0XG__KMteR0Hl1u02DRSU7zN8k57GBzf47Jo7_NVF1e6vex2oDbucGiPHp6QtAXXCG30FVxlBz1PClCmHkCMlS84qIWH6cX0gPi8TRlJdUSi4l0/s1600/IMG_9809.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitVydqjd1eLvQ-EYCwl81v-px5Wbom0XG__KMteR0Hl1u02DRSU7zN8k57GBzf47Jo7_NVF1e6vex2oDbucGiPHp6QtAXXCG30FVxlBz1PClCmHkCMlS84qIWH6cX0gPi8TRlJdUSi4l0/s640/IMG_9809.jpg" width="480" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHgm8PEaPCOzZJ1qDleum50-QBP5tn_mL2QdCcEhtE7kJl63mysfagXA_hJsB9Z5LFINkP7A74Ph3fhbrJhYt2CGvOrrIHSPJgsxR41zwa1rbHi0I3pY6FpXtYcdHStlfFTZ61CUz5b7s/s1600/IMG_9810.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHgm8PEaPCOzZJ1qDleum50-QBP5tn_mL2QdCcEhtE7kJl63mysfagXA_hJsB9Z5LFINkP7A74Ph3fhbrJhYt2CGvOrrIHSPJgsxR41zwa1rbHi0I3pY6FpXtYcdHStlfFTZ61CUz5b7s/s640/IMG_9810.jpg" width="640" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcJfBdeeqDbxCk2ko6PNE8El-2slAZuT6jAxLRsRS56WPsQ8Zvm6SAt8yTUrarKNQkb1Z8Zxa25FHPi979gLT4uTa9vxO0n5MRexwVbBgorQYv5G_XO5wZnQPlaUFSve1ilRd43nv07Z4/s1600/IMG_1950.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcJfBdeeqDbxCk2ko6PNE8El-2slAZuT6jAxLRsRS56WPsQ8Zvm6SAt8yTUrarKNQkb1Z8Zxa25FHPi979gLT4uTa9vxO0n5MRexwVbBgorQYv5G_XO5wZnQPlaUFSve1ilRd43nv07Z4/s640/IMG_1950.jpg" width="480" /></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Instead of doing recitals, their dance school does musical productions. There are musical theater classes, and as each class performs their show, the individual dance classes will participate in a scene. The kids LOVE them and it is a much more enjoyable experience for the audience. This year the Elementary cast was set to perform Madagascar Jr. Eva is in the musical theater class, so her role was as a penguin. Nora and Ellie are in the same dance class, so they were to dance as sailors during the scene where the animals have been taken captive and are headed to Madagascar on boat. The show is amazing, the costumes are adorable and Ellie is so excited to finally dance on stage!</span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">There were two shows that Ellie was to dance in. With the first show, I was backstage helping so I did not plan on seeing her dance. Instead, I was going to enjoy the show in the audience on second night, along with all of our family that were in attendance. </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">Unfortunately, it didn't exactly go as planned. </span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">Ellie ended up spiking a fever that afternoon. After pleading with her doctor, she allowed Ellie to go on with the show, as long as we promised to keep a close eye on her fever and come in immediately if something changed. The show went on, but Ellie was feeling so crummy that she did not want to dance. It was heartbreaking for our family, but we understood. Cancer took something from us that night, but I knew that Ellie would have many more opportunities to dance on stage.</span><br />
<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>
<span style="font-family: Georgia, Times New Roman, serif;">I wrote this on my personal Facebook page soon after the show:</span><br />
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">“I don't know CAST people all that well but I have a feeling that's a safe community to be a mess with.”</span></blockquote>
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A friend sent me this via text this evening. She could not have been more accurate. CAST families are remarkable and share the love of Christ in such real and tangible ways. I was a mess tonight, but walking into my girls’ performance, I hugged and cried on no less than a dozen shoulders. This is why I insist that my girls be a part of CAST. I don’t care how they choose t<span class="text_exposed_show" style="display: inline; font-family: inherit;">o express their creativity, I just want them to be a part of this culture. I told a mom yesterday that I felt like we hit the jackpot with CAST.</span></blockquote>
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To all of the CAST families that continue to love on us, thank you. We don’t know everyone, but everyone that we do know is so dear to our family. Thank you for being real, thank you for showing God’s love, and thank you for letting me be a mess.</blockquote>
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While the evening did not go how I hoped, I’m realizing that it’s not about my expectations. At the moment, we are ALL home together, and that is all that matters.</blockquote>
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<span style="font-family: Georgia, Times New Roman, serif;">In a miracle, Ellie's fever never returned. That was the first time that we have NOT gone to the ER after a fever spike. I was sad that Ellie felt so terrible, but happy that we were able to return home. </span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;"><b>A friend took these pictures from the night before and sent them to me.</b></span></td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">Now, I'm going to sidetrack with another story for a moment.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Last fall, Eva, Nora and Ellie were asked to participate in an event for the Children's Cancer Center. It was a fashion show fundraiser called Wine, Women & Shoes. They were asked to walk the runway with other families to give a face to pediatric cancer. The girls were excited, and it was an easy walk down the runway and back. Or so we thought. The girls were each given a sign to hold, which proved to be disastrous.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgz9dEBuZzzwaqlP4Oj57zjks-qDbEDUXHNbxBfvktdTTxZV2gEhMDSfPPuelD8im8nrysJpcY918uoMEUOPRuljO0I-ksC2ZQaRX64y_d745B5RYGzDiRL8ZHKUY-6ICYjWvxSZcsiPXg/s1600/IMG_0312.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgz9dEBuZzzwaqlP4Oj57zjks-qDbEDUXHNbxBfvktdTTxZV2gEhMDSfPPuelD8im8nrysJpcY918uoMEUOPRuljO0I-ksC2ZQaRX64y_d745B5RYGzDiRL8ZHKUY-6ICYjWvxSZcsiPXg/s640/IMG_0312.JPG" width="480" /></a></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Eva did great, and honestly so did Nora. The only problem was that Ellie decided last minute that she did not want to do it, and unfortunately Nora was the recipient of Ellie's frustrations. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Ellie was crying and hitting Nora with her stick all the way down the runway. There are no more pictures because I immediately jumped up to get Ellie as she walked off the stage. (I can laugh about this now, but in the moment I was equal parts hurting for Ellie and mortified that the walk was ruined.)</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">I get it. Ellie is four. It was a big venue with a lot of people, and she consistently does not feel well. I felt bad for having her do it, but honestly it was one of those things that I didn't know what would happen unless we tried. (This was before the Madagascar dance.) Needless to say, we haven't been asked back. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Ok, so fast forward to about two months ago. A friend posted online that the National Pediatric Cancer Foundation was hosting their largest fundraising event in Tampa, Fashion Funds the Cure, and they were in need of pediatric cancer models to walk the runway. An added dose of fun was that each child would also get to walk with someone in their chosen dream profession. Ellie said she wanted to be a ballerina.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Do you see where this is going? Dancing AND a runway show. The odds were not looking good for success. But hey, they don't know what's happened in the past! So, we signed Ellie up to walk.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZWGlPvLuhRWC9M2Ve30NJT7YfNslfAuWclsz58HnBeSgQrlZhe3DW5Xq3_Esw2NHckG9NoBeLcAmb85XtijyyPZt25gWw1GwWWY5SgtYd_5ozj6Q6WlL7DsCTkFpfzVwLhT8MBXzg7e0/s1600/32469110_10155202082006432_2605558548821704704_n.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="789" data-original-width="940" height="536" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZWGlPvLuhRWC9M2Ve30NJT7YfNslfAuWclsz58HnBeSgQrlZhe3DW5Xq3_Esw2NHckG9NoBeLcAmb85XtijyyPZt25gWw1GwWWY5SgtYd_5ozj6Q6WlL7DsCTkFpfzVwLhT8MBXzg7e0/s640/32469110_10155202082006432_2605558548821704704_n.png" width="640" /></a></div>
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<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Meet Ellie: Ellie was diagnosed with Pre-B Cell ALL 2016.</span><br style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;" /><br style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;" /><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">Ellie likes dancing </span><span class="_5mfr _47e3" style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; line-height: 0; margin: 0px 1px; vertical-align: middle;"><img alt="" class="img" height="16" role="presentation" src="https://static.xx.fbcdn.net/images/emoji.php/v9/fc7/1/16/1f483.png" style="border: 0px; vertical-align: -3px;" width="16" /><span class="_7oe" style="display: inline-block; font-family: inherit; font-size: 0px; width: 0px;">💃</span></span><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"> and painting </span><span class="_5mfr _47e3" style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; line-height: 0; margin: 0px 1px; vertical-align: middle;"><img alt="" class="img" height="16" role="presentation" src="https://static.xx.fbcdn.net/images/emoji.php/v9/f82/1/16/1f3a8.png" style="border: 0px; vertical-align: -3px;" width="16" /><span class="_7oe" style="display: inline-block; font-family: inherit; font-size: 0px; width: 0px;">🎨</span></span><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">. She dreams of being a ballerina dancer when she grows up. Ellie says: "I am an Elsa snowflake dancer </span><span class="_5mfr _47e3" style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; line-height: 0; margin: 0px 1px; vertical-align: middle;"><img alt="" class="img" height="16" role="presentation" src="https://static.xx.fbcdn.net/images/emoji.php/v9/f2e/1/16/2744.png" style="border: 0px; vertical-align: -3px;" width="16" /><span class="_7oe" style="display: inline-block; font-family: inherit; font-size: 0px; width: 0px;">❄</span></span><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">, dancing on a stage.</span></blockquote>
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<span style="font-family: Georgia, Times New Roman, serif;">What's the worst that could happen? She doesn't walk? It's ok. She doesn't dance? It's happened before. She hits someone? We will make sure she doesn't have anything in her hands. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Parenting seems to be a fine line of knowing when to push your child and when to hold back. By no means am I a stage mom, but knowing how much Ellie loves to dance, I really had hope that this would be something that she would enjoy. We are tired of cancer taking experiences from Ellie. With her treatment almost over, this seemed like the perfect time for her to shine. I talked up the ballerina for several weeks, and thankfully Ellie grew very excited to participate in this event. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">To everyone reading this right now, I don't know if I have the right words to express how wonderful this event was for Ellie and our family. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">It was magical.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Ellie shined like I have never seen her shine before. (Excuse me while I wipe my own tears right now.) We were not sure exactly what to expect, but I can promise you that it exceeded my wildest dreams for the night. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">From the beginning, all of the children were treated with great love and care. Last Saturday there was a costume and fashion fitting, followed up with pampering, gifts and lunch. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">From the moment we arrived for the show last night night, the pampering and fun began! Ellie got to have her make up done and all three girls got to meet princesses (this was another little girl's dream profession).</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Eventually Ellie felt comfortable enough for us to leave. A wonderful volunteer, Dara, who works as a Child Life Specialist at All Children's was in charge of Ellie for the evening. Eva, Nora, Mike and I left Ellie with her and then ate delicious food until it was time to find our seats for the show. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Every single person that was involved with this event was superb! I wish I could individually thank all of them, and I tried as much as I could last night. The runway show was fabulous with very popular (in our house) music from The Greatest Showman. Eva and Nora thought this was the greatest (no pun intended) and belted out the songs at the top of their lungs. From there, everything else really was centered around the kids and their dreams. </span><span style="font-family: Georgia, "Times New Roman", serif;">If you ever have the opportunity to attend one of these events, please go. I promise that you will not regret it. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">The models walked once by themselves, but they also each walked with a child. I didn't get the opportunity to meet the kind woman that walked with Ellie, but she was the perfect match for her. It's obvious to me that she took the time to make Ellie feel comfortable with her. But the end of the runway walk, it was clear that Ellie had no problem being on stage.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoJzizh_1okA1T4gybRLjD0UOg5Y7XSFswviCFj5xm8qUjvPsd7SgRwNqYgcD-ye6R_U_qj5PicjEvz7r9dbBNXXxbfPi_HNfGEMRSTvZVBk0eBUtm6xScif7uzVmXhEGvmQMSQJ6OVhQ/s1600/IMG_2524.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoJzizh_1okA1T4gybRLjD0UOg5Y7XSFswviCFj5xm8qUjvPsd7SgRwNqYgcD-ye6R_U_qj5PicjEvz7r9dbBNXXxbfPi_HNfGEMRSTvZVBk0eBUtm6xScif7uzVmXhEGvmQMSQJ6OVhQ/s640/IMG_2524.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;"><b>At this point, Ellie spotted us in the crowd and yelled out, "Hi Eva! Hi Nora!"</b></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;"><b>I signed "I love you" to Ellie and here she is doing it back to me.<br /></b></span></td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">Now, if you thought that was cute, hold onto your hats. Ellie said that she dreams of being a ballerina when she grows up, so we assumed that she would walk with a ballerina. One ballerina. No, Ellie did not walk with one, not two, but ELEVEN ballerinas!<br /></span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Ellie danced with the first ballerina at the end of the runway, then proceeded to dance with all of the other ballerinas in pair of twos. She danced her little heart out and we could not be more proud of her. She had so much fun and clearly enjoyed every moment of the evening. I have no doubt that this will make a strong impression on her life and be something that she remembers forever. (I am trying to get a full video of Ellie's walks. If I do, I will be sure to share them.)</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">There was a final walk with all of the children and their mentors. Ellie was beaming the entire time. </span><span style="font-family: Georgia, "Times New Roman", serif;">We were able to take a few more pictures, but then it was time for the evening to draw to an end. Even with all of the fun, it was a long night for everyone. </span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;"><b>Ellie spotted me and handed me her "magic flowers" given to her by the ballerinas.</b></span></td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">Finally, we cannot forget what struggles this little ballerina has gone through to get to this moment. When we arrived home she was sound asleep, but still needed her medicine. This is Mike giving Ellie her daily chemo. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Three weeks. That's it. Three more weeks of treatment, and then we enter into the "post-cancer" life. Thank you for continuing to follow along with Ellie. We are grateful for your continued prayers.</span><br />
<br />Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-54230918535648828482018-05-10T14:56:00.001-04:002018-05-10T14:59:22.391-04:00The First of the Lasts<span style="font-family: "georgia" , "times new roman" , serif;">I will never forget Ellie's first lumbar puncture. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Both of them.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie's very first spinal tap was when she was just 11 days old. She caught a cold from one of her sisters, spiked a fever, and was immediately sent to the ER. Standard protocol required this procedure as well as a hospital stay. Mike and I were terrified that something this medically serious was happening to our baby.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">In the end, she ended up being fine. All of the testing revealed that it was simply a cold and nothing else.</span></div>
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<tr><td class="tr-caption" style="text-align: center;"><b><span style="font-family: "arial" , "helvetica" , sans-serif;">Diddy, when she was so fresh and so clean, clean.</span></b></td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie's next "first" spinal tap was just as memorable. Same procedure, except this time chemotherapy was going to be injected into her spinal fluid. And again, Mike and I were just as terrified that something so medically serious was happening to our baby.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">I will never forget how I felt that day. Some of the details of the day are a bit fuzzy, but I will never forget the terror and helplessness that I felt. That lumbar puncture signaled the beginning of Ellie's treatment. A length of treatment that we could not comprehend. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Dr. Mogul was the person that performed Ellie's first LP. I vividly remember him telling us, "She will be fine. She is in good hands.". <i>But it was OUR baby, and this was different. </i>For us. For Dr. Mogul, this was just another LP, but still, Ellie was not another patient. He took great care of not only Ellie, but Mike and I too. I also remember him telling us, "</span><span style="font-family: "georgia" , "times new roman" , serif;">I have done tens of thousands of these.", and all I could think was, "I don't believe you. How is that even possible? But, there's no way you would lie about something like that. Not now. Not in this moment. OK, I'm choosing to believe you because I have no other choice.".</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">I now realize how that number is possible. It's a good thing that the doctors did not tell us everything at once. Ellie's treatment involved roughly 15 lumbar punctures over the next 26 months. That's just one kid. Suddenly, "tens of thousands" seems a little low.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">We were given the option to hold Ellie while they put her to sleep, so naturally I took it. Big mistake. Never hold your child while they are being put under, unless you are prepared. Almost instantaneously, Ellie's eyes rolled into the back of her head and her body went limp in my arms. Whatever level of emotional instability I was operating at increased 100 fold in that moment. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie survived that procedure with flying colors, and went on to go through many, many more. Each one filled with a little less anxiety. It never got easy, but it did become less difficult. And you know what? Ellie is going to be fine. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Well, we are beyond thrilled to report that this past Tuesday Ellie underwent her LAST LUMBAR PUNCTURE!!!</span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><b>Ellie was not in the mood to take pictures with people at this point, but I still got one with Ms. Judy.</b></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><b>"I want to see Dr. Mogul so I can dance with him." - Ellie</b></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><b>Whenever she is NPO, Ellie always ends up falling asleep.</b></span></td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">The first of the lasts has begun! Over the next month, Ellie will hit several treatment milestones and we hope to celebrate each one. Our plan was to celebrate with family and close friends on Tuesday after Ellie left the hospital, but that day ended up being much longer than we anticipated, at just over 9 hours long. So, we moved it to the following evening and relished the fact that Ellie will no longer have to undergo lumbar punctures. It seems surreal to be so close to the end, yet we could not be more excited!</span></div>
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<br />Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-43907029050936388552018-05-05T14:32:00.000-04:002018-05-05T14:32:52.459-04:00Children With Hair Loss<span style="font-family: Georgia, Times New Roman, serif;">Along the way, a lot of things have been neglected. The most frequent neglect: haircuts. Eva and Nora have both been in need of haircuts for a long time, and I recently scheduled a cut for both of them. It was time for the very long hair to go! </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Since their hair was so long, I figured that they both might be eligible to donate their hair. I did some research about various organizations and finally landed on <a href="https://www.childrenwithhairloss.us/" target="_blank">Children With Hair Loss</a>. They seemed to have a very good reputation (they provide wigs to children for free - other organizations charge) </span><span style="font-family: Georgia, "Times New Roman", serif;"> and they only required a donation of 8 inches. I introduced this idea to Eva and Nora, and well, it was not immediately well received. While they were both desiring a hair cut, neither one of them wanted to cut their hair that short. So, I let it go. I really tried hard not to influence them into a decision one way or another. If they decided to donate their hair, I wanted it to be because they wanted to. Not because they felt pressured into it. </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">The morning of the haircut arrived, and to my surprise Eva said that she "maybe" would donate her hair. She still was not sure. Nora was a hard no. She wanted Rapunzel hair. Off we went to my friend Alyson's house to cut their hair, and once we arrived, Eva was a definite yes. She wanted to cut her hair short and donate it!</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">As soon as Nora saw Eva's hair she immediately said,"I want my hair to look like Eva's". Then, it was Nora's turn to have her hair cut short for donation. She may not have had the same thought process as Eva, but the end result was the same!</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">As you can see, their hair isn't even <i>that</i> short. It was just that long to begin with. For the rest of the day they were beaming, sneaking glances in the mirror whenever the could. They love their new hair cut! And, we hope, that they also love that they have selfishly given to another child. </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">It was time to send of the cut hair, and without any prompts from us, Eva decided to send along a monetary donation as well. A bag full of coins and dollar bills was left on the counter. In all, $30 of her own money! We were so proud of this unexpected generosity. </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">If you or someone you know ever decides to donate their hair, we would definitely recommend Children With Hair Loss.</span><br />
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<br />Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-41715960488742954992018-04-09T21:32:00.003-04:002018-04-10T14:12:38.985-04:0062 Days<span style="font-family: "georgia" , "times new roman" , serif;">I heard of this idea early on in Ellie's treatment and knew it would be great for the girls. A visual way for them to understand the length of Ellie's treatment. The only problem was, I never got around to actually doing the project with them. At first, the idea was to make links for each hospital treatment left, but that never happened. Then, I thought I would do it for the last 100 days of treatment, but I never got around to it then either, mainly because of our Houston trip. I kept waiting for the "right" time to do it, and it turns out that was today. Finally, I was motivated, the girls were engaged, and the project is now complete! We now have a visual reminder of how many days are left of Ellie's treatment. The magic number that we happened to pick: 62!</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">There's nothing special about this number. But, you know what? The project is finished and the girls could not be more excited! They are giddy at the thought of watching this chemo chain dwindle away. We all are. Nora's exact words were, "I'm so excited for Ellie!"</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><i>Update: While in bed last night I realized that yesterday was indeed significant. It was April 9th, which is exactly two months until Ellie's end of treatment. God was honoring my number/order-loving self, even though I didn't realize it immediately.</i></span></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com1tag:blogger.com,1999:blog-3008462151725818551.post-21966824053261678592018-04-02T19:20:00.000-04:002018-04-03T19:21:01.569-04:00Two Years<span style="font-family: Georgia, Times New Roman, serif;">It has been two years since we found out Ellie had Leukemia.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Two years of hard questions and even harder decisions.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Two years of fear and despair.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Two years of hope and love.</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">Two years of wondering if things will ever be "normal" again, yet at the same time knowing that our family is forever changed.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">I saw this picture for the first time this week. It was taken at the very end of March 2016 while, unbeknownst to us, cancer was ravaging Ellie's body. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Then, a year later, when everything still felt so fresh, we put the anniversary out of our minds and headed to Orlando for a family vacation.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Now, two years after this life changing news, we are nearing the end of treatment. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">As of March 2nd, Ellie had 100 days left of treatment. That means we are well into double digit days. Ellie goes into the hospital next week for her port chemo, of which there are only 3 left. Only 3 steroid weeks left. She only has one lumbar puncture left. The big milestones are coming fast and we couldn't be more relieved. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">We wish Ellie were stronger at this point. It's frustrating to end with her looking and feeling worse than she did a year ago. Still, the hardest times seem to be behind her and she can only get stronger once treatment is over.</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">I heard a quote the other day that really resonated with me: "I realize now that it was not a test of Faith, but rather of Strength." </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;">Thank you for continuing to follow Ellie's treatment and the prayers for her and our entire family. If you are so inclined, we have set up a <a href="https://takethemameal.com/meals.php?t=HBBP6513&v=da7510b972" target="_blank">meal train</a> for the remaining weeks of treatment. </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-51645112107907204262018-03-28T19:25:00.000-04:002018-04-03T19:25:54.371-04:00ER visit<div style="background-color: white; color: #1d2129; margin-bottom: 6px;">
<span style="font-family: "georgia" , "times new roman" , serif;">Ellie is dressed like Elsa and watching “Princess Jasmine”.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Another fever popped up this afternoon, which took Ellie straight to the ER. Fortunately her counts are great, so she gets to go home. This visit will be our shortest trip to the ER yet, clocking in at under two hours.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">We are continually grateful for the nurses, doctors and staff at the ER at St. Joseph’s Children’s Hospital. Most of them know Ellie by name, greet her with a smile, and work hard to get her in and (<span class="text_exposed_show" style="display: inline;">hopefully) out quickly.</span></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">The finish line is so close. We cannot wait for it to be here. We also cannot wait for the time when every little fever does NOT send Ellie to the hospital.</span></div>
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Thank you for your continued prayers for Ellie and our family. They mean so much to us and have helped carry us throughout these difficult times.</div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-55528601715827734602018-03-03T19:28:00.000-05:002018-04-03T19:29:04.099-04:0099 Days<span style="font-family: Georgia, Times New Roman, serif;"><span style="background-color: white; color: #1d2129;">Ellie always makes sure that her Lightning jersey has some extra color.</span><br style="background-color: white; color: #1d2129;" /><span class="_5afx" style="background-color: white; color: #365899; cursor: pointer; direction: ltr; text-decoration-line: none; unicode-bidi: isolate;"><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/bethethunder?source=feed_text" style="background-color: white; color: #365899; cursor: pointer; text-decoration-line: none;"><span aria-label="hashtag" class="_58cl _5afz" style="unicode-bidi: isolate;">#</span><span class="_58cm">bethethunder</span></a></span></span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Also, we are officially into double digits! Only 99 days left of treatment! </span><br />
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<span style="font-family: Georgia, Times New Roman, serif;"><br /></span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-3743347117588855902018-03-01T10:33:00.000-05:002018-03-03T10:33:16.993-05:00Trip to Texas<div style="background-color: white; color: #1d2129; margin-bottom: 6px;">
<span style="font-family: Georgia, Times New Roman, serif;">Hello from Houston!</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">As some of you may know, Mike, Ellie and I have traveled to Houston this week to get a second opinion on Ellie’s treatment. For the past several months, Ellie has been ill without clear explanation. While not out of the realm of possibility, her status was not normal for a child at this point in treatment. That, along with various conversations and a parent’s intuition, we decided it would be best to have a fresh pair of eyes evaluate Ellie.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">At this point I feel like I should interject and say that we LOVE her doctors, nurses and staff at St. Joseph’s and think that they have done an incredible job with Ellie’s care. This is a decision we have made entirely on our own. We are her parents and ultimately are the ones responsible for her well being at this point. We haven’t been able to shake the idea of a second opinion for several weeks, and after her most recent hospitalization, it seemed like the time was right. The best outcome of this trip would also mean that we wasted time and money. We were ok with that if it meant that we gained peace and clarity. We did not want to have any regrets with her care.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Why Houston? Why not stay closer or go somewhere more well known for children? Why not All Children’s, Shand’s, St. Jude’s or (insert other pediatric oncology hospital here). Simply, we have a connection here. Ellie had her reveal for her Make A Wish trip back in December. At that time we met the gentleman that was going to generously fund her trip. While speaking with him, he told us that he was on the board for MD Anderson and gave us his card. He emphasized for us not to ever hesitate if we needed anything from him. Anything. At the time is was a kind gesture, but seemed unnecessary. Fast forward a few months and a hospital stay, and we felt it was time to take him up on his offer. While planning this trip, we also realized that we had another connection to a pediatric oncologist in Houston. The opportunity to consult with two separate doctors at two different hospitals seemed to confirm our decision to leave.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">So, here we are. We have consulted with both doctors and are happy to report that all opinions are in harmony with one another. They confirmed that Ellie was getting the proper treatment, but offered ideas on future tests to run and tweaks to be made to her treatment for optimal health. We have peace, clarity and a plan as a result. We feel like this was the best possible outcome for this trip, as it allows us to return to Tampa and have Ellie continue her treatment there. After the consultations yesterday, we tried to get an earlier flight home but were unsuccessful. So we are enjoying our mini vacation with Ellie and will return home on Friday evening.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Are we crazy for doing this? Maybe. It certainly was a question we asked ourselves a lot while planning. The best way I can explain it is this: we live in a world of crazy. With pediatric cancer, we now live in the world of “that would never happen”. Because it did happen. Ellie got cancer. She is within the small percentage of children to develop cancer, and because of that, nothing seems impossible. What if Ellie were in the small percentage of leukemia patients that doesn’t respond to treatment? What if she has a rare reaction to chemo? What if she’s developed another rare disease? All of these things seem possible to us, because the impossible already happened in April of 2016.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">What have we learned from this process?</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Ellie is more fragile than we thought. A cold, the flu or other virus are very serious threats to her health. We may not see the changes immediately, but they are happening. Her counts have slowly dropped over the past couple of months. Her physical appearance has also changed quite a bit since last fall.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Overall, Ellie has responded extremely well to her treatment. She was the model patient for a long time, responding exactly how the doctors expected her to. Once she was no longer the model patient, once all of the changes started happening, we began to worry. Our concerns were valid and we are so glad that we had the opportunity to speak with other doctors.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">We are fully aware of how fortunate we are to even have this opportunity to travel for Ellie’s care. This trip would not have happened without the help of many people. Most we know, but some we do not. To everyone that helped make this trip and these consultations possible, we are forever grateful. Our parents have been a source of constant support, never once doubting our decisions. They have encouraged us, helped us and dealt with many complex things along the way, so we can solely focus on Ellie. Thank you for your never ending help and support. We are continually blessed by your love.</span></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com1tag:blogger.com,1999:blog-3008462151725818551.post-54088474050664388392018-02-24T17:14:00.005-05:002018-02-24T17:14:39.633-05:00Ellie is in the hospital - #3<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: Georgia, Times New Roman, serif;">Sound asleep, but finally home.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">Thank you for all of your prayers. Ellie’s counts went up this morning and she remained fever free for 24 hours, so she was able to go home!</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">To everyone that helped us over these past four days, we love you. We couldn’t get through these hard times without your help. Thank you for keeping our family strong.</span></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-58226473135274382962018-02-24T17:09:00.005-05:002018-02-24T17:09:37.016-05:00Ellie is in the hospital - #2<span style="background-color: white; color: #1d2129;"><span style="font-family: Georgia, Times New Roman, serif;">Days 2 & 3 at the hospital have been more of the same. When you look at Ellie, she looks great! She is chatty, smiling and pretty active. In person she does not reflect the same child that you see on paper. Some of her blood counts have increased slightly since being admitted, but her ANC has gone down to 516. Unfortunately she also spiked a fever today at 1pm. The doctors would like for her to be fever free for 24 hours before they release her, and to have her counts a little stronger, if possible. So, for now, she stays at the hospital at least until tomorrow afternoon. Thank you for your prayers for Ellie!</span></span><br />
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<span style="background-color: white; color: #1d2129;"><span style="font-family: Georgia, Times New Roman, serif;"><br /></span></span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-54943692409006461942018-02-21T17:01:00.000-05:002018-02-24T17:03:45.751-05:00Ellie is in the hospital<div style="background-color: white; color: #1d2129; margin-bottom: 6px;">
<span style="font-family: "georgia" , "times new roman" , serif;">Since Monday, Ellie has been having fairly consistent fevers. It’s not the flu this time, but it is a cold and it’s a possibility that she’s recently had mono as well. A routine follow up appointment with her pulmonologist today turned into a suspicion of pneumonia. Ellie was sent to the hospital for an X-ray and then the cancer clinic for a check up. After much consultation, it was determined that Ellie probably has viral pneumonia, but the doctor wasn’t entirely ruling out <span class="text_exposed_show" style="display: inline;">bacterial pneumonia. Still, Ellie was looking good and acting well so it was decided that she could be treated at home with a strong antibiotic.</span></span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Then she spiked another fever. To the hospital she goes.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie was admitted to the oncology around 5pm today. She is currently being treated for pneumonia, but we still have a lot of questions about these fevers that she keeps having. Her platelets were at 35 on Monday, and today are down to 25. This is the lowest they’ve been since 2016, and she is reaching the point of possibly needing a transfusion.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Tonight we rest and wait. We feel secure knowing that Ellie is exactly where she needs to be. Sometimes the uncertainty is the worst part. It’s easier now that the decision has been made to stay at the hospital, and hopefully we can get some answers. Prayerfully, Ellie will receive healing.</span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">In your prayers for Ellie, please say one for the rest of our family. Eva had a cold last week and now Ellie and I have the same cold. Pray that we are healed and that Mike and Nora remain healthy. Thank you. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">Oh, and can I just say that Ellie’s insistence on having “rainbow toes” is one of my favorite things.</span></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-73031478487513960852018-02-19T15:40:00.000-05:002018-02-19T15:42:32.531-05:00Another chemo hold. Another flu?<span style="font-family: "georgia" , "times new roman" , serif;">The past week has been mentally and emotionally draining, and to be honest I don't think Mike and I have felt this stressed since 2016. While things have calmed down, we still don't feel like we have all of the answers. It was difficult to talk about everything going on with Ellie, and while it is still tiring, I wanted to update everyone about what has been happening. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie went in to the hospital last Tuesday for her lumbar puncture and port accessed chemo. While at her clinic visit before the procedures her doctor told us that she wanted to also perform a bone marrow aspiration on Ellie. This test would be able to give the doctors insight into what was going on with Ellie's body. This caused a lot of anxiety because this test is also used to determine of there is (a relapse of) leukemia. Ellie has not had this test done since April 2016 when she was first diagnosed. The preliminary results were good: no signs of leukemia. This was a relief to hear, but we were still worried until we received the full and final results on Friday and today: no leukemia.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">In addition to the stress of this test, Ellie's last viral panel from her previous ER visit came back negative. On one hand that is great news because that means no flu! But, on the other hand, we have no source for her most recent fevers, and that is extremely concerning.</span><br />
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<tr><td class="tr-caption" style="text-align: center;"><b>Her nurses always make sure Diddy and Lamby are waiting for her when she wakes up.</b></td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">Like I have said before, we firmly believe that Ellie will be fine, but what else will she have to go through until she reaches that point? We hope for the best, but this past week it felt like we were preparing for the worst. Still, we are thankful that God has continued to allow Ellie's body to heal. </span></div>
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<span style="font-family: "georgia" , "times new roman" , serif;">At the hospital that day it was determined that Ellie's daily and weekly chemo doses would be greatly reduced. She was at 125% dosage and that was dropped to 50%. It is clear that Ellie's body is no longer tolerating the chemo, so we were hopeful that this would help.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">After coming home from a long day at the hospital, Ellie spiked another fever late that afternoon. Sigh. I can't make this up. By the grace of God, with some quick efforts to cool off Ellie's body, the fever gradually went away. Ellie remained fever free all week, but still, you could tell she was miserable. The double dose of chemo, plus steroids, plus the bone marrow aspiration in her hip made her extremely tired and sore all week. </span><br />
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<tr><td class="tr-caption" style="text-align: center;"><b>Her lambs are ALWAYS with her.</b></td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">Another side effect of the steroids is nervous picking. During steroids weeks Ellie is constantly picking at her lambs (some areas are threadbare), her clothes or herself (lips and fingers).</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">So, Ellie went for a long time without a fever...until today. Another fever spike, another unexpected hospital visit. More tests and hopefully some answers. Although Ellie's previous tests showed no signs of the flu, today she is extremely congested, so the flu may be back. As of writing this post, we are still waiting on all test results from today. One current thought is that perhaps Ellie has mono. That certainly would help to explain a lot. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie's ANC was fine so she was able to leave the hospital after a couple of hours. But, her platelets have dropped again, down to 35, so she is on yet another chemo hold. We are home and that is always better than being at the hospital, but the past few weeks have certainly taken their toll on Ellie. She can tell when I'm getting ready to go to the hospital, and every recent time, she has started crying. This little girl is done.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Please continue to pray for Ellie's complete and permanent healing. Thank you for continuing to come alongside our family during this time.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><i>Update: As I was about to hit "Publish", we found out that Ellie does have a cold, but not the flu.</i></span><br />
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com1tag:blogger.com,1999:blog-3008462151725818551.post-16437270636714568722018-02-11T14:21:00.001-05:002018-02-11T16:22:06.691-05:00More Fevers<span style="font-family: "georgia" , "times new roman" , serif;">Since Ellie's last ER visit, just a few days ago, she has had a difficult time shaking her fever. While not necessarily a problem, it is unusual for her. Usually when she spikes a fever, we go to the ER, get her treated, go home, and she may spike another fever within the next 24 hours, but that's it. This time the fever is hanging on and causing a lot of discomfort. Ellie has been drinking, but not eating. She is not responding well to Tylenol and is not really able to take Motrin. However after much consideration with her doctor, we finally gave it to her and that helped the fever tremendously. She is complaining of pain far more often than usual. Pain in her mouth, her legs and her port. Pain everywhere.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Last night the fever reared its ugly head again. At 3am Ellie woke up to use the restroom and her little body was on fire. We called her doctor and headed to the ER yet again.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">What happens when Ellie goes to the ER? Well, we call the doctor through the on call service. Once it's determined that it is urgent enough for Ellie to be seen, we grab our bag (it's always packed) and head to the hospital. The oncology doctors are amazing and they always call ahead to notify the ER that Ellie is on the way. Once we arrive and sign in, we've never waited more than 15 minutes before heading back to a room. At this point, most people recognize Ellie and are quick to help. First up is port access and then blood draws. They run a CBC (complete blood count), collect blood cultures to determine if there is any infection in her blood and get a nasal swab to check for flu and run a viral panel. The CBC and flu results are usually within an hour, while the blood cultures take several days. Ellie is then given a dose of Rocephin, an antibiotic used to treat a wide range of infections. At this point Ellie is given fluids if needed, sometimes requested to give a urine sample, often sent for a chest x-ray and almost always given Tylenol. In order to not mask or misrepresent a fever, Ellie is not given Tylenol until she is under the provision of the antibiotic. As long as everything looks ok with her counts, her port is de-accessed and Ellie is sent home. We are then in close contact with her doctors, following up on any changes.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Last night Ellie was in and out of the ER in record time. Apparently not many people travel to the ER at 4am. I can't imagine why not? Ellie's chest x-ray showed some inflammation, but no signs of pneumonia. Her fever managed to go down on it's own, and her blood counts were good, although her platelets are dropping again. Still, all good reason for Ellie to be discharged and sent home. </span><br />
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<tr><td class="tr-caption" style="text-align: center;">Fast asleep while waiting to be discharged.</td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">To be honest, these past few days have had us a bit worried, simply because Ellie is not reacting the way she usually does to a fever. And that is one of the great stressors of cancer treatment: nothing is "usual". I have this constant feeling that everything could turn on a dime and that is where the stress lies. Even though we know Ellie will be ok, what does Ellie have to go through to get there? Even if Ellie is ok, what if she's not? </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We never want to go to the hospital unexpectedly. From the outside, I'm sure everything seems so simple. But what if this is the one time that it isn't? And that is why we have never once regretted taking her to the ER no matter the time of day or night.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie still has a fever, is complaining of pain, and still not wanting to eat. A benefit of last night's visit is that her CBC showed us that her platelets have once again dropped. After being on her chemo hold, her platelets continued to climb. She began chemo again this past Tuesday, and since then they have started dropping. On Thursday at the ER they were at 96, and last night at 59. If they reach below 50, then Ellie goes on another chemo hold. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Tuesday is a big day. Ellie is supposed to get two doses of chemo at the hospital, one through her port and another into her spinal fluid via a lumbar puncture. From what we understand, these treatments will likely happen no matter what, but she could end up on a hold from her daily chemo. While nothing new to her, we are concerned that Ellie may end up needing more blood transfusions in the future. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We struggle with sharing these intimate moments in Ellie's life. I constantly worry about how she will feel when she is older, knowing that this was shared with so many people. This is why I stopped sharing for much of 2017. However, we've come to realize that so many people assumed that since she was near the end of treatment, it was now easy for her. I assure you that this is not the case, and that is why I am sharing so much more frequently now. Everyone has their "thing"; that passion they wish to share with the world. Ours is now pediatric cancer. It is a terrible experience for any child to go through, and the horrors are minimized when the truth is not shown. Whether it's our family or another pediatric cancer family, whether they choose to share the details or keep them quiet, I guarantee that they need your help more than they are willing to let on. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Many of you have asked how you can help. Food and gift cards for food are amazing gifts! It sounds simple, but it really is an easy, practical way to help. We have had many people ask about caring for Eva and Nora, and while that is extremely generous it is not a huge need. Since we homeschool full time, we are used to being home a lot. Our schedule was greatly simplified this school year, so all of the girls are able to maintain a normal schedule with little interruption for Ellie's treatments. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Please pray that whatever is causing this fever is only viral, and if its indeed bacterial, then it will quickly heal. Please continue to pray for the rest of our family to remain healthy. Please continue to pray for Ellie's complete and permanent healing. Thank you for following along and praying for Ellie.</span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com2tag:blogger.com,1999:blog-3008462151725818551.post-71085501311461938912018-02-08T14:23:00.000-05:002018-02-11T14:27:13.905-05:00<div style="background-color: white; color: #666666; margin-bottom: 1em; margin-top: 1em;">
<span style="font-family: Georgia, Times New Roman, serif;">Another fever. Another ER visit.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">It feels like we are going through the fire today. We experienced a mild flooding in both bathrooms today, and now a fever. Th<span class="text_exposed_show" style="display: inline;">e former is definitely a first world problem and while we are annoyed, we are mostly able to laugh it off.</span></span></div>
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Fevers though, they always bring a feeling of uncertainty. Ultimately, we place Ellie in the Lord’s hands. After all, she is not ours. She is His. But man is it still hard.</div>
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Please pray that Ellie recovers from whatever is causing the fever (probably the flu, again), and that the rest of us stay healthy.</div>
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<tr><td class="tr-caption" style="text-align: center;">Asleep in my lap while waiting to hear back from the doctor.</td></tr>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-89139950138062043862018-02-06T19:34:00.001-05:002018-02-06T19:34:31.664-05:00No More Holds<span style="font-family: "georgia" , "times new roman" , serif;">We were back at the hospital today and Ellie is officially off her chemo hold. The past couple of weeks have been filled with some downs, but it looks like she finally may have turned the corner towards improvement. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">After Ellie's initial platelet drop she was put on a chemo hold for two weeks. When we went back last week to get her blood counts checked again there was good news and bad news. The good news was that her platelets had dramatically improved from 42 to over 160. The bad news was that her neutrophils plummeted, giving her and ANC of <500 which made her neutropenic and continued the chemo hold.</span><br />
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<tr><td class="tr-caption" style="text-align: center;">At the hospital with her sisters where everyone got knitted hats/headbands.</td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie's hair seems to have stopped falling out, but unfortunately the brown spots/scabs on her head are still there. It can be a common side effect of chemotherapy, but it is one that we have not dealt with until now.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">In addition to these brown spots, Ellie has developed an unusual rash that is covering her head, face and the top part of her chest. To be honest, it is stumping the doctors. It could be viral, a side effect of going off chemo, skin irritation or heat rash. These were some of the probable causes that we threw out during our discussion with her doctors this morning. They agree that it is nothing serious, and honestly it does not seem to be bothering Ellie too much. We see her rubbing them sometimes, but will only complain about it if asked. Just like most of her pain. Ellie really is amazing at handling everything that she is going through. We can tell when she is hurting, but she rarely verbalizes it. Like any other side effect we are keeping a close eye on it. Ellie goes back to the hospital next week for treatment and if it is still an issue, then she will be referred to a dermatologist.</span><br />
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<tr><td class="tr-caption" style="text-align: center;">This picture was taken several days ago. <br />Sadly, now it is much worse, but you can still get an idea of how they look.</td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;">Due to the persistent flu that Ellie has had over the past 5-6 weeks, she went into the hospital today for an additional treatment. To be clear, the flu does not affect Ellie the way you might think. She seems to spike a fever for about 36 hours (which during that time includes a visit to the ER) and then that's it. No other serious symptoms that we have seen. So while we are grateful that it has not adversely affected her, it is still an annoyance. </span><br />
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<span style="font-family: georgia, times new roman, serif;">After discussing with her doctors, we decided to try another round of an IVIG. She has had this treatment before so it was something that we were familiar with. If I am relaying this correctly, it is a protein that is added to her blood to help boost her immune system. We are hopeful that it will help Ellie's immune system recover. It is a somewhat lengthy treatment at 3-4 hours, but she was still in and out in one day with a total stay of 8 hours.</span><br />
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<tr><td class="tr-caption" style="text-align: center;">I managed to sneak this picture...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">...but Ellie made it very clear that she only wanted Diddy and Lamby in the picture.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinExrEXf_2qtE4n5EWmhx-ZvThPRHJkk2ENVA12F-b-lGO87kGfioUhJWOitGNIz8ytuC0TjM7FekbYKVk_PvMrz6CAtD-uZ_cjACOf5qw30Oi-XeT4JxY9HcprX6ZgA8osZjs0NOvNr4/s1600/IMG_1316.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinExrEXf_2qtE4n5EWmhx-ZvThPRHJkk2ENVA12F-b-lGO87kGfioUhJWOitGNIz8ytuC0TjM7FekbYKVk_PvMrz6CAtD-uZ_cjACOf5qw30Oi-XeT4JxY9HcprX6ZgA8osZjs0NOvNr4/s640/IMG_1316.JPG" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ellie and Diddy with their "best ports ever".</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjXQOVNIpQGt2b6-PQGj3M0b8gkNRSbI0zPvxHWgYKc9XmI9whq9NmjC1sPPTF2SlqZC2pgfbrFhfPYAO037z5FSIgQtAvX6a_g3xn3KeVBvRmYJGQn92DQ3qLsjRCtbnC9F-9N0V_RfX8/s1600/IMG_1320.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjXQOVNIpQGt2b6-PQGj3M0b8gkNRSbI0zPvxHWgYKc9XmI9whq9NmjC1sPPTF2SlqZC2pgfbrFhfPYAO037z5FSIgQtAvX6a_g3xn3KeVBvRmYJGQn92DQ3qLsjRCtbnC9F-9N0V_RfX8/s640/IMG_1320.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ellie is very considerate to her lambs, making sure that they can see the movies too.</td></tr>
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<span style="font-family: georgia, times new roman, serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">So, this is where Ellie is currently at: recovering from the flu, boosting her immune system, no longer losing her hair, yet covered in an unidentifiable rash. This is progress. One of her nurse practitioners will no longer let me say that we are crawling. We are going to get back up and run to that finish line. So here we are, as a family, getting up and helping Ellie run the rest of this race. </span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">And you are helping us get back up. </span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: georgia, times new roman, serif;">I would be remiss if I did not mention all of the people that have come to our aid in so many ways over the past two weeks. Thank you. So many people reached out to us, and honestly, I have not had the chance to respond to everyone yet. You have prayed, sent meals, heard our struggles, carpooled with our children, sent awesome encouragement posters, bought coffee and breakfast for all, sent entertaining gifts of love...I could go on. Thank you for the boost you gave our family when we desperately needed it. </span><br />
<span style="font-family: georgia, times new roman, serif;"><br /></span>
<span style="font-family: georgia, times new roman, serif;">Next Tuesday Ellie goes in for her next treatment. She only has 5 hospital chemo treatments left. Five! You can count that on one hand! She is so, so close to being done. The next treatment is a big one as it includes a lumbar puncture, but even then she only has two of those left. The end is drawing near and the light at the end of this dark, terrible tunnel is finally getting brighter.</span><br />
<span style="font-family: georgia, times new roman, serif;"><br /></span>
<span style="font-family: georgia, times new roman, serif;">Thank you for your continued prayers for Ellie and our family. We appreciate your love and support.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-8663284497669605522018-01-22T14:30:00.000-05:002018-02-11T14:32:31.036-05:00<br />
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<span style="font-family: Georgia, Times New Roman, serif;">In the interest of more consistent updates, here it is: we are back at the hospital unexpectedly. Ellie has a very high fever that spiked quickly. We will update as we have answers. In the meantime, check out Ellie’s adorable new hairdo that was cut this morning.</span></div>
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-81979925474133656582018-01-17T15:40:00.000-05:002018-01-17T15:53:02.609-05:00<span style="font-family: "georgia" , "times new roman" , serif;">We are crawling here, folks.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Five months left and we are crawling to the finish line.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">These 26 months are our marathon, and we've hit a wall at month 21.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">It's so hard for me to write. The whole process is filled with extreme highs and lows. Our news is either really exciting, due to some amazing experience we've had as the result of being a part of the pediatric cancer family, or it is really depressing and repetitious. One sounds like we are bragging and the other is just sad. How many times do people want to hear that Ellie isn't doing well? I mean, she's almost at the end, she should be getting better, right?</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Not necessarily.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">The only way most of you know what is going on is if I write it. By not sharing, I'm not educating about what cancer is really like for a family. Even the "good" cancer. Puke. There is no good cancer. I'm tired of pretending that just because Ellie will get through this doesn't mean that it is still hard. That is why I am writing now. Cancer treatment still controls our family and it's just as unpleasant as it was a year ago.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Ellie's body is struggling. For the first time in over a year she is on a chemo hold. Her platelets are low and the doctors won't let her continue with treatment until she rebounds. On one hand this is great news because she went a whole year in Maintenance without a hold. But on the other, it's extremely frustrating because she is so close to the end and is now having complications.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">She is losing her hair again. She's not bald, but it's thin enough that we need to cut it. For all intensive purposes she will be starting over. Within the past month, Ellie has had a cold, two different strands of the flu and a respiratory infection. We were in the ER just before Christmas due to the flu, back again at the New Year and again yesterday afternoon. Three ER visits in exactly four weeks. Ellie's visit yesterday happened about two hours after we came home from her regularly scheduled treatment in the morning.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">This is not going to let up until she is finished. On top of the grueling year that 2016 was for Ellie, in 2017 she received chemotherapy for 365 days. Ellie gets treatment every single day, and her body is absolutely worn out. Steroid weeks, the weeks where she goes to the hospital for extra chemo and then starts a steroid pulse, we just survive those. Nothing productive happens for anyone and life basically stops to tend to Ellie.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Ellie's wish, granted by the Make-A-Wish organization, was to see animals at the San Diego Zoo. It was supposed to happen in March, but we made the decision yesterday to postpone it until her treatment is over. It is absolutely the best decision, but it is still disappointing.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">While most people have been amazing to Ellie and our family, we have been hurt by some. It's hard to not receive grace when you desperately need it most. Especially when the lack of grace and love is coming from Christians. Many months later we still have a lot of hurt feelings. The pain is still raw and the situation hard to grasp. The opposite of love is not hate, it's apathy, and we experienced that firsthand.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">These are the lowest lows and we are in another low right now. To balance these out though, there are highs. In 2017...</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we took a family vacation to Orlando</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we spent time with family in North Carolina</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we met Hope at the Clearwater Marine Aquarium, complete with a behind the scenes tour</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we participated in the Children's Cancer Center Gelatin Plunge</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we visited Quantum Leap farms several times with 1Voice Foundation</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- Ellie participated in a photo shoot for the CCC and Panera Bread's Scholarship Foundation</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we celebrated Eva's 9th, Nora's 6th and Ellie's 4th birthdays</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we went on a family cruise together and swam with stingrays</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we celebrated Thanksgiving in North Carolina</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">- we rode the Zamboni at a Lightning game</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">So yes, good, fun things have happened. But not without a price. The stress is debilitating at times. We are all exhausted. It's evident that all five of us just want this horrible ordeal to be over.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">June 9, 2018...we are crawling to meet you.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0tag:blogger.com,1999:blog-3008462151725818551.post-39655098419204026912018-01-01T16:32:00.000-05:002018-04-03T16:33:48.914-04:00Hello 2018! First Half<span style="font-family: "georgia" , "times new roman" , serif;">2018 has finally arrived.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Thank you Jesus!</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">When Ellie was diagnosed in April 2016, this new year seemed so far off. Going through these past 20 months of treatment, we felt every step of the marathon that we were living. Of course we knew in our minds that we would eventually get to this point, but at times it seemed like it would never arrive. But it has and we couldn't be more thrilled. We can now say that Ellie will be finished with treatment THIS YEAR!</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">With 2017 behind us, I will catch you all up on what has been going on in our lives and specifically how Ellie has been doing. I have been finding it increasingly difficult to blog because it's either depressing and sad, or it is exciting and showy. Both emotions feel too extreme to convey, so my hope is that by including it all together in one post you will get a better representation of what our year truly encompassed. Like each of you reading this, we had good days and bad days. It just feels so much more exaggerated this year. The bad days were awful and the good days were so great, we almost could forget about Ellie's cancer treatment. </span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
<span style="font-family: "georgia" , "times new roman" , serif;">So, here we go. This was our 2017.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;"><b>January</b></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;">After not spending very much time together out as a family in 2016, we gently eased into the new year unsure of what Ellie would be capable of doing.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span>
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie began Maintenance in December and continued with that treatment protocol throughout the entire year.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b>February</b></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Little things like playing outside showed us that Ellie was regaining her strength.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We attended our first of several Lightning games and quickly became huge fans. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We visited the circus, but Ellie refused to have her picture taken and quickly fell asleep once the show began. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We visited Legoland with the Sunshine Kids Foundation, and it was easily one of the best days of the entire year. We will always look back at that day as a turning point in Ellie's treatment. After an extremely difficult year for Ellie, that day at Legoland showed us that normalcy would be returning to our family.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Outings are always scheduled around Ellie's treatments. After all of this fun, it was time for Ellie to go back to the hospital. Not to worry, there were cookies to decorate that day!</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We threw potty training in at the end of the month. No more diapers! Then, Ellie got the flu and managed to keep it for three months. This led to three unexpected ER visits in the Spring. You get Tamiflu! You get Tamiflu! Everyone gets Tamiflu!</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">The iPad went everywhere with Ellie. Here, she is waiting at the pulmonologist.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b>March</b></span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">The first of the unexpected ER visits.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie requires breathing treatments almost daily, some more aggressive than others.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Back at the hospital for scheduled chemo, This visit included a lumbar puncture. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Due to the success we had with Legoland, in March we decided to surprise the girls with a vacation to Orlando. It's hard for me to describe how much that week healed our family. It was perfect. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b>April</b></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;">More scheduled chemo!</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Another fever which led to another ER visit.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie began feeling better and decided it was time to start practicing for dance class in the fall.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b>May</b></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Another unexpected ER visit.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">A close up of Ellie's eyelashes growing back in.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Scheduled hospital visit. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span>
<span style="font-family: "georgia" , "times new roman" , serif;">Ellie: "I like you. I want to be with you."</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><b>June</b></span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We were thrilled to escape to North Carolina with family for a week, even if it did end with an ER visit.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Ellie is excellent about taking her various chemo drugs and other medications.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">We finally bit the bullet and took her out of her crib. </span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Scheduled treatment with a lumbar puncture.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Gelatin Plunge!</span><br />
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Jaclyn Yorkhttp://www.blogger.com/profile/17516921448769960836noreply@blogger.com0